27 July 2011

Autistic Pianist Clarence Kang performs at KL Methodist (Hokkien) Church. Wed...

Wednesday July 27, 2011

Kang-do spirit


Piano prodigy: Clarence Kang’s gift in music is like an untapped reservoir and his music teacher mother strives to find the best channels to develop his full potential. – CHUA KOK HWA/The Star

Clarence Kang is an autistic savant with an extraordinary talent in music.

BEGINNING with Frederic Chopin’s upliftingGrande Valse Brillante Op.34 No.3, Clarence Kang Zheng Wei plays fluidly, his fingers effortlessly caressing the keys of the white grand piano.

The strapping lad, looking handsome in his white long-sleeved shirt and black pants complete with a black vest, then performs the romanticLiebestraum by Franz Liszt.

Continuing to tickle the ivories with poise and confidence, he serenades us with the up-tempo Flight Of The Bumble Bee by Nikolai Rimsky-Korsakov, and his favourite, C.P.E. Bach’s Solfeggietto.

*Full story in The Star Wednesday 27th July 2011 (Star2-Family-page2)



20 July 2011

Paws for serious thought

editorial image

CLEVER DOG: Louise Hart, dog trainer at Dogs for the Disabled, based at Nostell Priory, near Wakefield, with labrador Frankie in training. Below, Vito, Venice and Frankie take a breather, Cocker spaniel Vito in training, Hollie Byrnes and Hilton. Bottom, Louise Hart with Venice

SCIENTISTS have begun new research to understand the minds of dogs and try to measure how much they can benefit humans who need help. Michael Hickling reports. Pictures by Jonathan Gawthorpe and Gerard Binks.

Hilton Byrnes has his own Facebook page, which isn’t surprising really since he loves being the centre of attention. His eager charm and genial tolerance have already made him a legend in his own front room.

One teatime recently, he was sliding about on the polished floor and grinning at the applause from the audience on the settee. He lay down and played the fool when a collie puppy came through from the kitchen wanting to roll around and pretend to fight.

Hilton is a two-year-old yellow labrador. He is in this family home to do a job and his sense of fun is part of the reason why he’s so good at it. He has been trained in tasks such as helping his disabled owner remove her socks and cardigan, close the door and retrieve things she’s dropped on the floor. But it’s Hilton’s personality which is the key because it’s this which has cemented a bond for life between dog and human owner.

Emotionally, it’s a two-way street. Hilton (Hilly) was an insecure dog before he came to live here. Taking on the responsibility of helping 17-year-old Hollie Byrnes has taken him out of himself in the 11 months since he’s been living here. And for Hollie, Hilton’s arrival at her home has changed her life.

Scientists are now trying to find out more about just how dogs are able to do this and to measure the mutual benefits they can help deliver. The sociologists call this social capital.

The jury’s still out on when this human-canine bond first formed. We were still hunter-gatherers at the time and evidence that has come to light in the past couple of years suggests the domesticated dog began with an orphaned wolf taken in by humans 30,000 years ago. Genetic diversity in dogs dates from the time of the first settled agricultural communities in the Middle East.

Lincoln University was the first in Europe to have a department specialising in veterinary behavioural medicine. It was set up by Professor Danny Mills who says: “Quite a lot of our work has been on dogs and how to maximise the benefits they bring.

“We are increasingly looking at the economic issue in order to engage with the Big Society agenda. If we can quantify the benefits financially, government might sit up and take notice.

“Keeping a dog is often regarded as a luxury but, economically, it can be very important. What is a dog’s value when you think that the lifetime cost to the state of one autistic child may be £3m?”

In Prof Mills’s department, Dr Hannah Wright is in the first year of a three-year project, funded by the Big Lottery, to measure the impact of a pet dog on an autistic child and its family.

Dr Wright is recruiting families to assist and the plan is to involve 120 of them who will be tracked and monitored over the course of the project.

It’s the first time science has been brought to bear on analysing dog and people relationships and interactions in detail, focusing on specific individuals.

“At the moment, the anecdotal is the only evidence we’ve got,” said Dr Wright. “We’ll be going into homes to video the interactions and try to pin down what is happening between dog and child.”

She has devised a ‘parent stress index’ comprising 36 questions, each of which receives a score of one to five. This will be completed before a family gets a pet dog, then again afterwards and later for a third time as a follow-up.

Dr Wright is working with Parents Autism Workshops (PAWS), part of the work of the Dogs for the Disabled charity whose Northern centre is at Nostell Priory, near Wakefield.

This is where Hilton the labrador came from, and the charity’s expert who matched him with Hollie Byrnes is Louise Hart.

“I trained Hollie and Hilton together,” she says. “Hollie has changed immensely. She was very shy and lacking in confidence in the beginning.

“Once she had been introduced to Hilton, you noticed a change. At one point she said ‘no’ to her mum who told me later it was the first time she’d ever said that. She was becoming more assertive – she has to be with a dog.

“The biggest thing for disabled people is social inclusion. People worry about saying the wrong thing when they meet them, so may say nothing at all. A dog opens social barriers, they make friends through the dog.”

Louise Hart has worked for the charity for 15 years. She supervises the last eight weeks of a dog’s training and the advanced placement.

“As dogs comes through, I’m matching them up with a client. It’s a bit like a marriage dating agency. You are creating a life partnership.”

Demand far outstrips supply. “I place 20 a year. I could do 60. It’s bespoke training for each one because you have to treat every one as an individual. There may be 10 people with MS and it affects them all in different ways. I assess how they can keep their independence. The gift of independence is priceless.”

Louise teaches her clients to treat the dog leash like an emotional telephone wire. “If you feel fear, it goes straight down the leash and the dog thinks, ‘Where’s the tiger?’”

Waiting at the centre on this particular Friday afternoon for a bit of additional instruction was Vito, a bright as a tack cocker spaniel. He is going to a seven-year-old with cerebral palsy, and just to show his versatility, Vito put on a demonstration of how to remove clothes out of a tumble-dryer.

Frankie, an 18-month-old labrador who was also on the point on joining a client, seemed to be dying to show his paces, too. Instructed to fetch items dropped on the floor, he shot out of his blocks like a greyhound.

It’s not just the efficiency of the retrieving it’s the enjoyment and exuberance he shows in his work which is a delight to see. Frankie’s big personality is going to give joy to someone soon and his demeanour seems to proves the old adage that a trained dog is a happy dog.

“I’ve placed more than 100 and every now and again you get really attached to one,” says Louise who has three pet dogs of her own.

“But it’s not in your best interests to have such a strong relationship; it can cause problems for the new owner. You get emotional stuff and you get some real highs. There’s no job like it in the world.”

Why are there so many stories of dogs reacting to an emergency with their owners moments before it actually happens?

“Their people-reading skills are better than ours,” says Louise. “They are capable of more than you think they can manage. It’s only a dog? Never say that. It’s a mutually beneficial relationship. I’ve had huge experience of dogs and I never cease to be amazed at the strength of the relationship that underpins it.”

Once they go to live with their owners, the dogs will have public access rights to go wherever their owners wish. Some councils make over a carer’s allowance to them if their presence reduces the hours of overnight stays required by a human carer.

Hollie Byrnes’s mother, Sandra, was the one who made the initial inquiries about an assistance dog. They were waiting nearly two years.

“Hollie had started to worry me; she wouldn’t go out on her own,” says Sandra. “She didn’t like to be left on her own and when she was out, she was afraid people would look and she would whizz straight back with her head down.

“Now they look in a different way. Hilly’s taken the focus off her as a wheelchair user, and they ask instead, ‘what’s his name?’ The amount of confidence he’s given Hollie – she’s like a different girl.”

Hollie has rare congenital disorder called arthrogryposisis. She’s in the first year of a two-year course in health and social care at York College. Her ambition is to go to university to study to be an occupational therapist. Hilton sits with her all day long at college and occasionally snores in the lectures.

“I can’t remember what life was like before him,” she says. “I wouldn’t have stuck the college course because I didn’t know anyone. But everyone I come across wants to be friends with Hilly. He’s a comedian, very sensitive, copes with everything. We go to the pictures and then have a KFC. In the charity shops, all the ladies love him, he’s a bit of a celebrity. We’ve joined the Flyball team in York and won rosettes and have weekends away. We do it all as a family.

“Hilly had been taught to retrieve to open hands. That didn’t work for me so I’ve taught him to bring things to my lap and to do other tasks like tidy his toys up.

“If I’m nervous, he reads it off me. That stops me from being nervous. All those things I used to panic about, I can’t now.

“He loves to work. If nothing is happening, he’ll put my mobile on the floor so he can pick it up and give it back to me.

“I’m a different girl altogether. I feel I owe him an awful lot. He gave me confidence and a whole new lease of life. That makes him so special for me.”

It couldn’t be a better match and the anniversary of Hilton coming to live with Hollie is on July 27.

He’ll probably have a few more friends on Facebook by then.

BE PART OF THE AUTISM RESEARCH WITH YOUR PET

* Dr Hannah Wright’s research team is recruiting families who have a child with ASD and will be acquiring a pet dog within the next few months, to participate in telephone interviews. Please contact Kate Marsh: 01295 759836, kate.marsh@dogsforthedisabled.org

* Dogs for the Disabled open day, 11am-2pm today, Nostell Estate Yard, Nostell, Wakefield. Entertainment for children and families. Tel 01924 860699.

Opening the doors into the world of children’s autism

Opening the doors into the world of children’s autism


RESEARCHERS at the University of Bolton have developed a groundbreaking new tool that could eventually improve the lives of autistic children and their families all over the world.

Their work will help researchers understand more about the way children, and especially autistic children, react to and process facial expressions.

The university’s Computer and Cyberpsychology Research Unit has developed a database that includes hundreds of images of cartoon and human faces — to help researchers understand more about the way children, and especially autistic children, react to and process facial expressions.

The tool is called the University of Bolton Affect Recognition Tri- Stimulus Approach, or BARTA, and contains faces portraying happiness, sadness, anger, disgust, fear and surprise.

Children with autism often struggle to read emotions from other people’s faces and some researchers think this is because they do not like looking at human faces or process them as objects rather than faces.

Recent studies have found that autistic children prefer to look at cartoon faces and process these in the same way as nonautistic people process the real thing.

Louise Lawrence is the principal inventor of the system and in the final year of her PhD at the University’s School of Health and Social Sciences.

She has worked closely with Debbie Abdel Nabi.

The BARTA system was recently unveiled at the British Psychological Society’s annual conference.

Mrs Lawrence said: “Requests have come from universities as far afield as the US and Hong Kong.

“It allows the academic community a new and comprehensive research resource that can facilitate new, innovative and pioneering research into the different ways facial expressions of affect are perceived and processed when communicated by synthetic and human faces."

17 July 2011

Autistic children's choir

Saturday July 16, 2011

Autistic children’s choir sings at mall to create awareness

By OH ING YEEN
ingyeen@thestar.com.my
Photos by AHMAD IZZRAFIQ ALIAS


SUNDAY shoppers stopped in their tracks, drawn to the vocals of a group of 15 children clad in white shirts and black vests with red lapels. The scene resembled like a performance by a choir group in the mall.

However, when the shoppers saw a sign which read Autism Awareness Day, it dawned on them that the children were autistic. The chlidren were part of the Nasom Maestro Choir Group.

National Autism Society of Malaysia (Nasom) president Datuk Danny Tan’s plea to the public was not to have an indifferent attitude towards these children.

Nasom and Kiwanis Club of Petaling Jaya (KCPJ) jointly organised the Autism Awareness Day recently at the Empire Shopping Gallery in Subang Jaya.

In the limelight: Umar (holding microphone) and the choir performing on stage.

The theme Knowing Me Knowing You is to celebrate the success of the partnership.

Tan said the awareness programme was aimed at highlighting the services to rehabilitate children with autism.

“Autism is a disorder, it is not a disease; there are many misgivings when it comes to autism.

“Many parents are in denial, there are still children suffering within the spectrum of the disorder.

“Early intervention will be good for the children because they can be educated provided they come early,” he said.

The highlight of the event was the performance by the choir which also made its way into the Malaysia Book of Records.

Umar Hasfizal, one of the choir member who performed solo, was natural on stage, interacting with the audience and accentuating his performance with body language.

During one of Umar’s solo performances, he was accompanied by Clarence Kang Zheng Wei who worked his magic on the keyboard.

Kang played the song Hold My Hand, which was composed by his mother but inspired by her son.

“Autistic children are insecure, he is always holding my hand and he feels comfortable when doing so.

She lamented that some people stare at autistic people and have asked “Why do you bring your (autistic) kid out?”

“I do hope that more people can be aware and learn about autism; they are not abnormal, they have a disorder and need a lot of understanding and care from the public.

In his element: Yim singing a song during the event.

“Don’t treat them differently, it is important for the public to accept them,” she said.

Kang has Attention Deficit Hyperactivity Disorder (ADHD) and autism. He took up classical piano and has achieved the diploma level in just three years. For some, it may take 10 years to reach such a level.

Two years ago, music producer-songwriter-recording artiste Brian John Yim, together with a group of friends, realised the severity of autism not only in Malaysia but all over the world.

He then approached Nasom to gather a group of about 100 autistic children.

After an audition, he hand-picked 25 children and trained them for six months. And the Nasom Maestro Choir Group was formed.

“They cannot be still,” Yim recalled about the experience training the children.

“The biggest challenge is to get them to sing together. They do not make eye contact with you and I sometimes wonder if they were even listening.

“However, the children are special to me; no matter how tough the challenge is, I have never thought of giving up.

“People tell me it is impossible but the more impossible the challenge is, the more I want to overcome it,” he said.

S. P. Setia Foundation chairman Tan Sri Lee Lam Thye, who was the guest of honour, stressed the importance of education and early intervention.

“Early detection of autism is essential and it allows families to get advice and support to help them adjust and respond to the child’s needs.

“I hope the government can provide Nasom aid and financial assistance, which is needed for their programmes,” he said.

Currently, Nasom has established 16 early intervention programmes and three vocational programmes for those with autism around the country.

Fordetails, visit www.nasom.com.my

12 July 2011

Walk with Faith

Wednesday July 13, 2011
Walk with faith
One Voice
By PANG HIN YUE

Big-hearted volunteers walk the extra mile to raise funds for people with learning disabilities.

SHE took a leap of faith when she quit her decade-long job as a secretary and signed up for a diploma course to teach special needs children. Five years on, Rebecca Jane Thomas has taken on another challenge – not only has she dedicated her time to teaching students with learning disabilities, she has also taken on the task of raising funds for the community.

The hot, cloudless day that kept the rain at bay on July 2, brought smiles to Rebecca and her group of volunteers who organised “A Silent Walk In The Night” at 1 Utama Central Park in Petaling Jaya, from 3-8pm.

The inaugural event attracted 450 people and raised RM8,120 for Dignity & Services, a self-advocacy group that works with people with learning disabilities.
Successful: The ‘Silent Walk’ raised RM8,120 for self-advocacy group, Dignity & Services.

It was no small feat, considering that no event management company was hired to do the job. It was just a crowd of big-hearted volunteers who worked diligently for two months to get sponsors and participants for the walk.

“Everything went smoothly. There was a lot of support and goodwill. And we will continue to explore options to raise money for the learning disabled,” enthused Rebecca.

Award-winning singer/songwriter Reshmonu and his two sons, as well as PR queen Datuk Nancy Yeoh, were there to lend their support by taking part in the candle-lit silent walk.

People with learning disorders came out in droves with their families. Some baked cookies for sale, some showcased their artwork and some performed on stage. There were 14 booths at the event, mostly related to providing services and support for the learning disabled.

Instrumental

Singer and song composer Brian John Yim, who had been instrumental in setting up the very first choir of autistic people last year, was at hand to ensure Umar Hasfizal, Clement Ooi and Tan Seng Kit hit the right notes. Their friend, William Chan, spontaneously went up on stage and danced as they sang their hearts out. Many in the crowd looked on in silent admiration. Who could imagine that people with autism, whose biggest issue is language deficit, were up on the stage singing in harmony with the rest.

By all accounts, the event was a huge success. So how did Rebecca manage to pull off the event, given such short notice?

“I have found my calling in life, that is, to teach children with learning disorders and to work with their parents for breakthroughs. Just as I am blessed, I want to pass on the blessings to others,” explained Rebecca.

Although she is open to teaching children with various needs, she finds more and more families who have children with autism and Down syndrome, seeking her services.

Rebecca spends considerable time conducting one-on-one therapy and group learning.

During the day, she teaches two 12-year-old students in an unconventional setting. They are a familiar face at the Starbucks outlet at the Great Eastern Mall in Jalan Ampang, Kuala Lumpur.

“The kids tend to do better when they are not confined to their home. At Starbucks, the students get a chance to learn in a social setting, and the staff have been very helpful and considerate,” she said.

But her daily routine does not end there. Her abundant energy enables her to teach late into the night. Between 8pm and 10.30pm, Rebecca has 12 students with learning disorders at her place in Taman Bukit Angkasa, Kuala Lumpur. She enjoys sharing knowledge with them and getting them to interact with her.

Rebecca is motivated by her love for special needs children. She wants to give hope to their families and share her philosophy that all things are possible.

It is precisely her unbridled energy and optimism that prompted Dignity & Services to partner with her and her group of volunteers.

“What draws us to this motley group of people is their vision, humility and sheer enthusiasm. Most of all, their hope in people with learning disabilities,” said Mettilda John, executive director of Dignity & Services.

From the looks of it, this partnership could be the beginning of more exciting things to come. For the members of Dignity & Services, it was another busy and memorable weekend, having just completed their 5km run the week before at the Standard Chartered KL Marathon.

Altruism is alive and well. What a welcome relief in the wake of selfish drivers who hog parking lots meant for wheelchair-users and commit other insensitive, discriminatory acts.

> One Voice is a monthly column which serves as a platform for professionals, parents and careproviders of children with learning difficulties. Feedback on the column can be sent to onevoice4ld@gmail.com. For enquiries of services and support groups, please call Malaysian Care ( 03 90582102) or Dignity & Services (% 03-77255569). E-mail: onevoice4ld@gmail.com